Courtney Nichols, MSc, ScM, CGC, Genetic Counselor/Study Coordinator from Johns Hopkins University has agreed to come to the meeting and speak about the ongoing HD study! She will also be bringing some study participation kits, so if anyone is interested, she will speak with them privately after her talk and they will have a chance to participate in the study!
Also, Nicole Baxter-Murphey will be attending the meeting and will speak about her book, "Hirschsprung's Disease: Solving the Puzzle." I believe she will have a few copies if anyone is interested!
I'm working on an outline for the days events and still need to talk to the hotel about reserving a block of rooms.
Still feeling a little under the weather, but I wanted to update all of you about these things.
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