Today, I got a call from Angie who was also born with Hirschprung's Disease. Angie is about my age and from what she told me, I am certain she has had a tougher go at "post op" life than I have. This was the first time I have ever spoken verbally to another adult with HD. It was indeed nice to talk to "someone like me." This is making me even more excited about the upcoming meeting next August. I'm hoping Angie and everyone else out there can make it! It's such a relief to know that others experience the pains & problems that I have. It's also a relief to know that others have beaten the odds as I have. The voices of HD patients are getting louder and stronger as the research continues daily. This gives me so much hope for my grandchildren, great-grandchildren, and further generations that may inherit the faulty gene as I have.
Angie,
It was so nice talking with you today. Please call me once in a while even if it's just to chat.
We are not alone! I will be praying for you every day. Don't give up the fight just yet. You have much to be proud of. You are a survivor.
Take care of yourself!
Brenda
Subscribe to:
Post Comments (Atom)
Hi, Brenda, I just registered for the August meeting. Thanks so much for all your work to get this planned. I'm willing to give you any help that you need so let me know.
ReplyDeleteChrissy Conant (I'm in the Yahoo group so that's how I found you)
Chrissy,
ReplyDeleteI'm 36 years old and was just recently diagnosed wtih HD not sure if I had it all my life just on the mild side or just got it as an adult but suffer from consitpation and stomach pains all the time. I've been trying to find information out online about it so I know what I'm dealing with but don't know where to start. I am trying to find out what type of complications I may have due to this and ways to make living with it better so I'm not always in pain due you have any advice for me? My email in tinadee78@att.net if you could respond there if you any advice please I would greatly appreciate it.